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Archive for the ‘Affordable Care Act’ Category

Author Janet Mason read from her latest book, Tea Leaves, a memoir of mothers and daughters, (Bella Books) at the Golden Slippery Author Series held at Adath Israel in Merion Station, PA.

“I’ve taught people of all ages throughout the years,” said Janet Mason, “and I’ve always recognized that the older students have the most interesting stories.  The people who attended the author event have lived long and interesting lives and they have important stories to tell.  It was an honor hearing their stories during the lively discussion we had.

Janet Mason (third from right) with members of the Golden Slipper Book Group.

Janet Mason (third from right) with members of the Golden Slipper Book Group.

Tea Leaves spans the lives of three generations of women. It is about my experience taking care of my mother when she was terminally ill. It is also includes my mother’s stories about my grandmother, a spinner in a Kensington Philadelphia textile mill, and a fair amount about my own life.

The following is an excerpt from Tea Leaves that I read at the Golden Slipper Author Series.

It was 1927, the latter years of the Roaring Twenties. My grandmother would have seen the cartoon images of the flapper, a woman with bobbed hair and a short skirt daringly showing her legs from the knees down. This was the image of the loose woman—heralded in F. Scott Fitzgerald’s The Great Gatsby—that came to represent the decade. But this lifestyle existed for only a few—those who belonged to the class of the decadent rich, their excesses based on the skyrocketing stock market that would soon come tumbling down. For the majority of women, especially working-class women like my grandmother, it was still scandalous to be divorced.
With her children in tow, she moved back to the city where they stayed with an old church friend in the Germantown section, the neighborhood I later moved to—which at that point had become a haven for artists, political activists and lesbians—when I moved away from my parents’ home in the suburbs. It was evident from the disappointed look on my mother’s face, even now, more than a half century later, that regardless of the large house they stayed in she would have much rather been back in the country.
“Even the yard wasn’t anything compared to the country. It was just a patch of grass with a wrought iron fence around it. There was a birdbath with a wrought iron bench next it that was painted white. Who sat on a bench?” I looked at my mother—her scrunched-up face framed by her short hair—and I could see the ten-year-old staring out of her seventy-four-year-old face. “My favorite thing about that yard was the elm tree. It had low branches, as low as my favorite climbing tree in the country. It was the closest thing to home that I could find.”
She shifted painfully in her chair. “Eventually Mama found a job at the mill, and we rented a row home nearby in North Philadelphia. Our backyard was tiny, a small square yard with a cement walkway between two patches overgrown with grass and weeds. There wasn’t a tree anywhere in sight. We moved around a lot. Once or twice we only moved two blocks from where we had lived before. I always thought my mother was hiding us from our father. If he couldn’t find us then he couldn’t come and take my sister and me away.”
My mother held her shoulder and her eyes narrowed as she spoke. “I was a latchkey child. This was before the Lighthouse started a program for the older kids as well as the younger ones. The Episcopal women started the Lighthouse as a daycare and after-school program for the children of single mothers. Do you remember when I took you to the old neighborhood when you were ten?”
I nodded, remembering it well. A new hospital stood on the site of the old Lighthouse, off Lehigh Avenue, in the heart of North Philadelphia. When my mother was growing up, the neighborhood was full of European immigrants. Now it was a mostly Spanish-speaking section known as the Barrio. My mother’s stories of the Lighthouse captured my young imagination. I pictured an island jutting from the ocean, a tall cylindrical building with a pulsing light, an actual lighthouse. My memories of visiting her old neighborhood were full of exotic tastes and smells—arroz con pollo, plantains, the greasy sizzle of fried tortillas at the Spanish restaurant where we ate.
My mother sat gazing out the front window, looking far away into her own past, full of a different set of tastes and smells. “Before I started going to the Lighthouse with my sister, I came home from school earlier than my mother and had to let myself in with the key I kept on a string around my neck.
“One day I lost the key. That was the time I was homeless. I was out in the freezing cold for hours. It seemed like days before my mother came home from the mill. There was a storefront next to our house, and there was a light in the window so I went and stood in front of it. The store was closed but there was a woman inside. I could see her folding the linens, her outstretched arms looked like a cross draped with a purple sash at Lent.”
“Why didn’t the woman in the store let you in?” I asked. We had moved from the dining room into the living room, and my mother sat in her gold velour chair. The ottoman, covered with the textile my grandmother brought home from the mill, sat in front of her.
My mother gave me a look of pure astonishment. “In those days children were to be seen and not heard. All my life I’ve been in the wrong place at the wrong time. First children weren’t listened to. Then when I was grown, Benjamin Spock came around and said parents should shut up and listen to their children.” My mother’s words were deliberate, not angry; precise, rather than resentful. As she spoke, I saw a skinny seven-year-old in a frayed cloth coat, shivering as she waited the long hours for her mother, her teeth chattering as she stood in the doorway.
“Usually, I would take Mama’s dinner to the mill. We had ice boxes in those days—every morning the ice man would come with a block of ice and by the end of the day the ice melted down into the tray. I still remember the drops of water beading up inside the wax paper that covered the pound cake. In those days we didn’t think about what a healthy dinner was. So we had cake, not for dessert but for the main course. No wonder my mother became a diabetic. I passed by all the factories and red brick warehouses along the way. You’d never know it was the same neighborhood today with all those vacant run-down warehouses and factories everywhere. I still know the names of the lace they displayed in a store window on the corner: Italian Milanese, French Chantilly, English Honiton, Bedfordshire, Antwerp, Point de Lille.”
My mother’s story entered my imagination and I saw her as an observant child, turning the corner to where the textile mill loomed in front of her, four stories of red brick. She would have passed the night watchman who greeted her by name, to enter the back door into the clanking, whirring factory, which like a large hungry animal blew its hot breath on her neck. As she scurried down the familiar hallway toward the cafeteria, the familiar gray walls weighed down on her as heavy as the flabby arm of an old woman.

Tea Leaves, published by Bella Books, is available in bookstores and online in book and eBook formats.

You can learn more about Tea Leaves here.  (  https://tealeavesamemoir.wordpress.com/tea-leaves-in-the-news/  )

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Recently, I went on a tour through Vermont with Tea Leaves, a memoir of mothers and daughters (Bella Books, 2012).  There were Tea Leaves event in Burlington, Vermont — in the Women’s Center at the University of Vermont, the Peace and Justice Center, and at Phoenix Books; at the Woodknot Bookshop and Turner’s Cafe in Newport, Vermont; and at the Galaxy Bookshop in Hardwick, Vermont. We enjoyed the rolling hills, the Vermont fall foliage, and seeing old friends and meeting new ones.  Vermont is beautiful and relaxing.  In many ways, it felt like home.  We were very close to the Canadian border and were careful not to get lost.  I learned, from friends in the area, that it is very easy to get out of the U.S. but not so easy (without a passport) to get back in. In this post, I am bringing you some highlighs in the form of photos from our trip. We’ll be back.

Fall leaves in Hardwick, Vermont

Tea Leaves, a memoir -- Janet Mason standing behind sign outside of Galaxy Books in Hardwick, Vermont

Author Janet Mason in the Galaxy Bookshop in Hardwick, Vermont

Pam in the Galaxy Bookshop in Hardwick, Vermont -- wearing her crown

on the road in Northeastern Vermont -- green mountains in background

Standing next to the sign at the Women's Center -- the University of Vermont

Janet Mason reading from Tea Leaves (Bella Books) at the Women's Center, the University of Vermont in Burlington

Barbara with her new friend, the goat

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Rooster in Vermont

Sky just before the rise of sunset in Northeastern Vermont

Janet and Wendy at the Peace and Justice Center in Burlington, Vermont

In the hallway behind the Peace and Justice Center. Barbara petting a whale.Janet and Janice -- connecting with new friends

on the road with Tea Leaves -- Vermont fall foliage

Janet and Nat -- seeing old friends, like family

Connecting with old friends -- Barbara, Anne and Pam

feminist graffiti at UVM -- new meaning for The Women's Room

Farmhouse on the road in Vermont -- we'll be back soon!

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read the entire piece in The Huff Post

It was 2008 and I heard a buzzing all around me. I had gone to the doctor and was misdiagnosed as having dementia but I discovered later that I had had a nervous breakdown. I said to my grown daughter, ‘What is this thing called Obama?’ and she replied, ‘Obama is a black man and he is running for president, Mama.’ ‘Oh my Lord,’ I said. ‘My mama had told me this day was coming and now it was happening.’ Then I realized that I had to pull myself together. I had to watch this historic moment take place. -Jean, 77

Jean, a 77-year-old black woman, uttered those words in a room full of about 20 white people at a senior center in a predominantly white working class neighborhood in Philadelphia. I was there to do a reading from my book Tea Leaves, A Memoir of Mothers and Daughters (Bella Books, 2012), and then to lead a discussion and conduct a writing exercise. I looked at Jean. My mother’s name was Jane. She was 74 when she died and she had been misdiagnosed as having arthritis by an HMO doctor who prescribed Extra Strength Tylenol. My mother found a new doctor but it was too late. She was correctly diagnosed with fourth-stage cancer of unknown origin and six months later, she was dead.

It has occurred to me, as I go around reading from Tea Leaves and listening to people’s stories, that in writing about my mother, I have not only written her story and my story and my grandmother’s story. I have touched into a deep, mostly untapped vein of writing the story of many women — and men — whose lives are often overlooked not only in literature, but by society in general and by the medical system in particular.

Another woman in the group talked about being misdiagnosed and, as a result of her untreated illness and the wrong medicine that the doctors in the hospital had given her, she went down to 87 pounds and nearly died several times. She got better and then felt she had wasted her life up until that point — in pettiness, in pursuing things that didn’t matter.

The group met in a 55-plus senior center, but most of the people in this group were in their mid-seventies. I have taught creative writing through the years to children, teenagers and adults of all ages, but have always recognized that my older students are the ones with the best stories to tell. Everyone in the room was brimming with stories — one man wrote about being placed in an orphanage at age 4 because both of his parents died of tuberculosis. He then went on to serve in the military but afterwards was denied entrance to college based on low math scores. An extremely fit woman in the group — who works out every morning in the center’s gym — wrote how her husband became frail and ill and how one day she came home to find that he had not been able to get out of his chair all day. She gradually became his caretaker. The hardest part was learning how to be the strong one and not let her grown children know how terrified she was.

read more…..

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The Lovett Library Memorial GardenMy friend Maria Fama and I were recently talking about libraries.  Both us are writers and long-time friends.  Of all of our accomplishments through the years, we are both really proud of the fact that our books can be found in The Free Libary of Philadelphia.  There are presently five copies of my book Tea Leaves, a memoir of mothers and daughters (Bella Books, 2012) in the library system.  One copy is at the Lovett Memorial Branch, and others are at Central, the Walnut Street and Indendence branches and the Joseph E. Coleman Northwest Regional Branch (in Germantown).  One of these copies of Tea Leaves is being transferred between libraries and the last time that I checked a copy was on reserve.

author Janet Mason standing outside Lovett Library

When Maria and I talked about the fact that libraries are so important to us because when we were working class kids on our way to growing up and becoming writers, the library was a sanctuary for us.  I don’t have to tell you about the budget cuts affecting libraries in Philadelphia (and elsewhere) and the signs about limited hours on the doorways.

Without libraries, there would be fewer readers and most definitely fewer writers.  There would be more violence in the streets and less learning.  Can we afford that?

Janet Mason talking about Tea Leaves at Lovett Library

Recently, I did a reading from Tea Leaves at the Lovett Memorial Branch (my local library) of the Free Library of Philadelphia.  I invite you to see the pictures and also to read the article that was written in NewsWorks about the reading.  We had a lively discussion after the reading about our mothers, grandmothers, fathers and grandfathers, and the people’s history of Philadelphia. I credited the city as being a partner in my writing process.  The library is  a partner, too.  It has been there with me through all the years.  Let’s make sure it stays with us.

The Lovett Library sign

Madeleine and Barbara at the Lovett Library in Philadelphia

from NewsWorks article by Jane Shea

How does one process a mother’s mortality and honor her life, her history and her influence? Author, Janet Mason, found the answer in her writing. The resulting book, Tea Leaves: A memoir of mothers and daughters, documents that journey. Mason shared readings from Tea Leaves in her Mt. Airy neighborhood twice this past week at the Lovett Memorial Library last Tuesday and at the Big Blue Marble bookstore on Friday.

Mason’s mother, Jane, was diagnosed with late stage cancer in 1993, after being initially misdiagnosed. Mason did what comes naturally to an only child – she assumed the role of primary caregiver. She had six months left with her mother. In that time, Mason not only handled the “immense responsibility” of caring for a terminally ill parent, but also recorded those experiences, family stories, memories, history and learned how they shaped three generations of women.

Mason who describes her mother as a atheist, feminist, hopeless realist and an amazing storyteller always encouraged Mason’s writing. “I got a lot of validation,” she said. Through her published poetry and literary commentary on This Way Out radio program, Mason has pursued her creative dreams in a way her foremothers never could, making good on the advice of an early therapist who once told her, “You’re the only one who can write the story about your life.”
read the entire article

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How Caring for My Mother Brought Me Into the LGBT Caretaker Club: A SAGE Experience

read the entire piece in The Huffington Post

When my mother became terminally ill, I went home to take care of her without a second thought. I worked as a freelancer at the time, so my work life was portable. As an only child I had no siblings to turn to (or to fight with or resent later). The fact that I am a lesbian was never an issue with my parents.

If anything, having to “come out” only made us closer. In my early 20s I was suddenly in a situation where my parents and I had to work through my declarations of being a lesbian and everything that meant in the early 1980s. I come from a background — working-class (no complaints) and British (stiff upper lip) — where we rarely expressed our feelings. In many ways my coming out as a lesbian was an extension of my mother’s feminist politics. (When I told them I had something to tell them, her guess was that I was either gay or pregnant.) My father did struggle temporarily with the fact that I am a lesbian, but after I came out to my parents, he told me for the first time that he loved me.

However, as a lesbian caretaker of my terminally ill and elderly mother, I became part of a trend that I came to consider after writing Tea Leaves: A Memoir of Mothers and Daughters, recently published by Bella Books.

Out and Aging,” a 2006 report, found that 36 percent of LGBT boomers are caring for aging parents. One significant reason that a higher percentage of us care for aging parents than heterosexuals is that we are less likely to have children to care for. Even when we are partnered, we are often perceived as “not having families.” This was not the case with me — both of my parents loved and accepted my partner. My mother left a letter to be read after her death, entitled, “A letter to my unexpected daughter-in-law, Barbara.”

It could very well be that people in the LGBT community (which crosses the spectrum of ethnicity, culture, and class) inhabit the role of caregiver in a spiritual sense (much as gays, lesbians, and transgender people inhabited the role of the two-spirit or “berdache” in many Native-American cultures).

It is true that there is a youth culture in the LGBT community (reflected in the gay media and consumer culture), but at the same time we inhabit the role of the “outsider” in society and may perceive the wisdom of elders — both family members and our friends who have become family — as important.

read the entire piece in The Huffington Post

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Health Reform, The Supreme Court And What I Learned From My Mother

read the entire piece in The Huffington Post

As the Affordable Care Act worked its way through the courts in the past three years, I began to reflect on how it might have affected my own life and that of my mother, who died of cancer in 1994. After much deliberation, the Supreme Court just ruled that the Act is constitutional.

Like most people, I, too, was confused about the Act but I knew that it would benefit me along with millions of others. People like me and my mother need a health care system we can believe in — something better than what was in place.

The medical system is mostly a profit-making structure that overlooks the most vulnerable sectors of our society — especially older women.

I was a witness to this when my mother was dying from fourth-stage cancer that had metastasized to her bones. She initially became aware of the cancer when she woke up with a crushing pain in her sternum. Her doctor at a health maintenance organization (HMO) diagnosed her with arthritis and suggested she take extra strength Tylenol. He refused to give a referral to a specialist.

It’s often said that women become invisible after the age of 45. We also become invisible to the medical system. Older women are more likely to have complicated medical issues and are more likely to be low-income, having spent fewer years in the workforce because of raising children and caretaking elderly parents.

The Patient Protection and Affordable Care Act has already been helping the elderly population. As of January 2011, Medicare has been providing no-cost screenings for cancer, diabetes and other chronic diseases. At the same time, the Affordable Care Act established a new Center for Medicare & Medicaid innovation that tests better ways of delivering care to patients.

These two provisions alone are evidence that the healthcare reform has begun to improve the medical system — both in terms of preventive treatment and in research. Medical treatment is likely to become less fragmented (and profit-driven) and more transparent. As a result, people will get better treatment and are less likely to fall through the cracks.

If ObamaCare had been in place in 1994, the year my mother died, it may have made a difference. However, my mother also needed the one thing that cannot be legislated: trust. Her experiences as a nurse, as a working-class person and as a woman taught her not to trust the medical system. In many ways, this distrust was generational. My grandmother, at the end of her life, had several heart attacks and was hospitalized in a nearby inner-city teaching hospital. When my mother went to visit, she found interns prepping her mother for a gynecological exam. She stopped them; my grandmother, who was 77 years old, died a few days later.

read the entire piece in The Huffington Post

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